Category: JK Update

Julie passed several milestones this week… Julie had a great week!  All her appointments went well; she is enjoying the mickey button and had a great visit with relatives.  I talk more about the times with relatives in next week’s update. This past week Julie finished up all of her initial follow-ups with her doctors. … Continue reading Week Twenty-One Update #53

We started getting out again now that Julie’s condition continued to stabilize… Julie celebrated the week with several firsts.  Overall, we had a great week. Since last week’s update went out so late, this update has some repetition, but I’m going to keep it short. This week was the first time Julie got her fingers… Continue reading Week Twenty Update #52

Julie made good progress on her bottle feeding this week… We’ve had good days and bad days this week.  (I was originally planning to send this out Tuesday.) Julie has had three appointments in the past 8 days – heart doctor, feeding therapist, and GI doctor.  I talked about the heart doctor in the last… Continue reading Week Nineteen Update #51

We continue getting used to Julie’s needs as we settle into our new schedule. I hope you can appreciate my sarcasm (and understated humor) in this update…   Julie’s four month mark came and went.  She continues making progress, but the g-tube is no fun at all. We’ve had another week of excitement with the… Continue reading Eighteen Week Update #50

Not much to add to this lengthy update… (I missed the week 16 update and this will serve as the week 17 update so this will be an especially long update.) Julie is truly enjoying being at home although we have had several challenges.  We are tired and rather stressed from her normal and special… Continue reading Independence Day 2011 Update #49

After 103 days in the NICU Julie came home just in time for Father’s Day… Julie came home yesterday evening! Sarah and I stayed in the hospital Friday night.  We arrived promptly at 11 pm after a long day of shopping, negotiating with the hospital staff, and preparing Julie’s room. The night went well, but naturally,… Continue reading Father’s Day 2011 Update #48

We received the best news since Sarah learned she conceived… Great news – Julie is coming home!  Sarah and I are packing to spend the night at the hospital.  We will bring Julie home either Saturday afternoon or Sunday. Julie was taken off all breathing support on Tuesday just after I sent the last update. … Continue reading Day 102 Update #47

We had a good week with our friend Joe. He has some peculiarities but his music amazes the heart. Julie also had a good week… Julie is recovering splendidly from her 4th surgery.  She should be home by the end of the week! Her breathing is making remarkable progress.  She was removed from the ventilator… Continue reading Fourteen Week Update #46

We had quite a full day with Julie’s surgery and meeting our new music friend…   On Julie’s 3 month birthday, she celebrated with her 4th surgery.  She did very well and is sleeping comfortably.  Here are the details: Monday ended at about 4 am this morning, so we slept in fairly late.  I was… Continue reading Three Month Update #45

We had the entire weekend to think, worry and pray about the 4th surgery. I didn’t get much sleep over the weekend since I couldn’t help thinking we were making a mistake…   The final showdown starts at high noon Tuesday (sounds like a bad western movie).  We meet with the surgeon and anesthesiologist, sign… Continue reading Thirteen Week Update #44